William molloy, mb, 3 larry squire, ma, 1 sacha dubois, ba, 3 judith a. Dec 15, 2000 caregiver burden is an allencompassing term used to describe the physical, emotional and financial toll of providing care. Validity and reliability of turkish caregiver burden scale. Caregiver burden comes out when the caregiver perceives the home care situation as a negative experience. An analysis of the hierarchy of items mokken scale analysis showed a strong and moderate hierarchy for the subscales and the total scale, respectively. Although stress and burden are not diagnostic labels in and of themselves, they are key components of the profile of psychological distress experienced by many caregivers. A comparison of tools used to screen for caregiver burden. Care partner is the preferred term because it reflects the reciprocal nature of the relationship. Validity of the 10item short version of the burden scale for family caregivers bsfcs.
Background the burden experienced by family caregivers is the most important caregiver related. An intensive adaptiation to the care situation is necessary. Family caregivers of patients at the end of life often experience carerelated burden. Assessment of burden among family caregivers of people. Impact of family burden and affective response on clinical. In studies where caregiver burden is a central outcome, either zbi22 or zbi12 is suggested for use.
The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. Assessment tools background canadas population is aging and individuals aged 65 and over are anticipated toaccount for over 25% of the population by 2068 bohnert et al. Brazilian version of the burden interview scale for the assessment of burden of care in carers of people with mental illnesses. Values of the cronbachs alpha reliability, splithalf reliability r, and testretest reliability r were. Do you know how to effectively screen for caregiver burden or a tool we could utilize. The results were used to finalize the feeling of care burden. The caregiver burden can be based on a variety of aspects of the care situation e. Caregiver or care partner burden is a common and complex issue in the care of homebound patients, especially those with dementia. Caregiver distress in parkinsonism veterans affairs. According to mokken analyses, it was possible to single out three unidimensional scales tapping three latent constructs for the 22item zbi. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. There are several easily accessible online selfassessment tools. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. Impact on caregiver burden of a patientfocused palliative.
Family and friends are often relied upon for support. Read each statement and rate it on a scale from 0 never to 4. Caregivers experience differing challenges during different phases of the cancer trajectory that can. Adaptation and validation of the caregiver burden scale to brazilian cultural milieu. With this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The drafted scale was administered to 203 caregivers of dementia patients treated at two large public hospitals in southern thailand.
A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was founded in 1977 to focus attention on and develop supports for family caregivers of adults with chronic care impairments and in particular. Caregiver reaction scale caregiver selfassessment questionnaire. The study data w ere collected using the information form and zarit caregiver burden scale. Care of stroke patient is a matter of enduring stress and leads to considerable amount of burden among caregivers.
Each item on the interview is a statement which the caregiver is asked to endorse using a 5point scale. We surveyed 646 family caregivers of patients with intractable neurological diseases or stroke using 28 preliminary care burden scale items obtained from qualitative research. The reliability and validity of the subjective burden scale sbs were investigated in 255 japanese family caregivers of elderly relatives with dementia. The composite measure the dementia burden scale caregiver dbs. The present study examined the reliability and validity of the bsfcs. Mothers of children with mental retardation showed significant difference on care givers burden than the mothers of normal children in the areas of general stain, disappointment, and emotional involvement.
If you have a 3 or 4 as an answer, give careful thought about why the caregiver scored so high on the question and see if you can find away to reduce the stress. A composite measure of caregiver burden in dementia. Subjective burden is a central variable describing the situation encountered by family caregivers. On the last page of this assessment, you will find tips, resources and next steps that will help you reduce your burden and see that your loved one receives the care they need. Each item describes an event associated with caregiving. These stressors can impact on a caregiver s level of burden. Has your social life, eg with family and friends, been lessened.
Caregiver burden and generic wellbeing stull et al. Caregivers of patients with advanced cancer from the parent study completed a caregiver burden scale and patients completed quality of life, symptom intensity, and depressed mood measures. Both the caregiver risk screen and the caregiver assessment tool are available in. The sort version of the zbi is consisted of 12 items in two domains, personal strain and role strain. Burden scale for family caregivers in 20 european languages.
Aug 18, 2006 we constructed a concise multidimensional care burden scale that reflects circumstances unique to japan, with a focus on intractable neurological diseases. Kingston caregiver stress scale providence care hospital. Factors related to caregiver burden in caregivers of patients. This selfadministered 22item questionnaire assesses the experience of burden. The results might help us convince some of the older adults we serve that it may be time to enlist the services of a home care agency. Caregiver reaction scale the following questions are designed to help us understand the types of difficulties you and your family face as caregivers. Some caregiver stress scales try to determine how much stress caregivers should be experiencing by assigning. Burden and coping strategies in caregivers of stroke. Data were collected at baseline, 1 month, and every 3 months thereafter until patient death or the study ended. As shin et al had suggested, it may be that the burden is quantitatively similar but qualitatively different for the spouses, offspring and other family members. The main objective was to analyse the zarit scale s zs ability to identify signs of caregiver collapse amongst people looking after patients suffering from dementia.
Section 2 the scale is the key component of this screening tool. Caregiver strain and burden encompasses the difficulties assuming and functioning in the caregiver role as well as associated alterations in the caregivers emotional and physical health that can occur when care demands exceed resources. Assessing family caregivers mental health using a statistically derived cutoff score for the zarit burden interview. Validity and reliability of turkish caregiver burden scale among family caregivers of haemodialysis patients ayse cil akinci and rukiye pinar aims and objectives. To investigate the validity and reliability of the caregiver burden scale in family members who provide primary care for haemodialysis patients. Little is known about the ways in which families cope while caring for a relative with stroke in developing countries. Use of the zarit scale for assessing caregiver burden and. A new short version and screening version michel bedard, phd, 1,2 d. Many other caregiver burden tools exist which health care providers could potentially use to measure caregiver burden. For assessing the burden of family caregivers, the brazilian version of the scale burden interview 20, which verifies the burden on caregivers who take care of people with mental and physical disabilities, was employed. Cg was based on the modified caregiver strain index, neuropsychiatric inventory questionnaire distress scale. The screen for caregiver burden scb is a measure designed to identify distressing caregiver experiences rapidly.
The framework of the development of the burden scale for family caregivers bsfc was based on two conceptual models. A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was founded in 1977 to focus attention on and develop. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters. We applied a cost of illness approach and measured direct costs, indirect costs and coping strategies from the primary caregivers perspective, i. Care givers burden and perceived social support in mothers.
So far there are very few specific reliable and valid scales measuring burden in care team members. Validity and reliability of the zarit burden interview in. The major scale included 12 items directly related with burden, whereas the other two scales presented only two items each and were linked to guilty and embarrassment. His tool, the zarit burden interview zbi, is used worldwide yumiko, 2006. N2 the assessment of burden has become a challenging task for most researchers because cultural, ethical, religious and other personal values may influence perceptions of meaning and consequences of burden. Department of health and human services caregiver burden and institutionalization, hospital use, and stability of care baila miller and stephanie mcfall university of illinois at chicago, college of associated health professions november 1989 pdf version 89 pdf pages. Zarit burden interview american psychological association.
Short version of the burden scale for family caregivers. Caregiver, dementia, scale, validation validity and reliability of the zarit burden interview in assessing caregiving burden boon kheng seng,1. Caregiver burden instruments often focus around the different. To measure subjective burden caregivers rated the degree of distress that they ex. Assuming a 97% response rate, we estimated a sample size of 124 caregivers. It was designed as a descriptive study and include d family caregivers of 210 patients who received hemodialysis therapy. Unidimensional 12item zarit caregiver burden interview. Do you think your own health has suffered because you have been taking care of your relative. Using and interpreting the montgomery borgatta caregiving burden scale article pdf available january 2006 with 2,946 reads how we measure reads. All items except items 1, 5, 10, 17, and 20 were reverse coded in such a way that 1 implies the low to no caregiver burden and 4 indicates high. Six items could not be ascribed to any underlying latent construct. Selected caregiver assessment measures family caregiver alliance. The zarit burden interview about dementia pathways.
We thought a caregiver burden scale or a burden of care questionnaire that members selfadminister would be best. The measurement of caregiver burden taipei medical university. This study was conducted to evaluate the burden of caregivers who provided care to hemodialysis patie nts in two different communities. Caregivers had been caring for the ra patients on average for 11 years, re. Among the sociodemographic caregiver variables, interestingly, whether one is a sole or co. Would you tell me whether any of these apply to you. The 25item scb, created specifically for spouse caregivers of alzheimers care.
Each question are scored in fivepoint likert scale from 0 to 4 never to almost always high score represent higher feel of burden. Unidimensional 12item zarit caregiver burden interview for. Revised scale for caregiving selfefficacy steffen et al. Questionnaires and interviews on caregiver stress and burden, coping with caregiving. The following questions reflect how people sometimes feel when they are taking care of another person. Nearly always please circle the response the best describes how you feel.
Development of a caregiving burden scale age and ageing. Family practice notebook 2020, family practice notebook, llc. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this. Validation of the burden index of caregivers bic, a. Development of a burden scale for caregivers of dementia patients.
Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The scale is designed for community living lay caregivers, not institutional care staff. The major scale included 12 items directly related with burden, whereas the other two scales presented only two items each. Caregivers are relatively healthy on average but caregivers of more severe ra patients are relatively. The purpose of this crosssectional study was to validate the selfperceived burden scale, a 10item selfreport instrument designed to measure chronicall. The aim of the present study was to explore burden and coping strategies in caregivers of stroke survivors and identify the relationships between. This subjective burden is one of the most important predictors for negative outcomes of the care situation for the caregivers themselves as well as for the one who requires care. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore.
These results lead to the 12item zbi selected for further analyses. Coping with caregiver stress and burden american psychological. Please circle the response the best describes how you feel. Comprehensive data from the ida project were the basis of the. Caregiver strain index csi i am going to read a list of things that other people have found to be difficult. Factor analysis and rasch analysis of the zarit burden interview for. Caregiver burden is the stress which is perceived by caregivers due to the home care situation. To prevent caregiver burden and to enhance the capacity to provide care it is important to have insight in their support needs. Adapted with permission from zetit sh, reever ke, bachpeterson 1. Lever, msca, 4 and martin odonnell, mrcpi 3 purpose. Pdf using and interpreting the montgomery borgatta. Although access to this page is not restricted, the information found here is intended for use by medical providers. We also evaluated the dimensions most affected by the zs and risk factors associated with caregiver burden and collapse. A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was.
The purpose of this study was to identify profiles of family caregivers who provide care to patients at the end of life. Patients should address specific medical concerns with their physicians. Caregivers burden scale cbs and berlin social support scales bss tools were used in this study. Promoting excellence in endoflife care is a national program of the robert wood johnson foundation dedicated to longterm changes in health care institutions to substantially improve care for dying people and their families.
Economic burden and mental health of primary caregivers of. Professional care team burden pctb scale reliability. Caregiver burden and institutionalization, hospital use, and. A practical guide to caring for caregivers american family. Neuropsychiatric inventory caregiver distress scale. Based on the theoretical concept of subjectively perceived burden, organizationally based factors of burden and structural factors of burden, we report on the construction of a care team burden scale and its scale quality criteria. Each item is rated on a 4point likert scale, ranging from 1 strongly disagree to 4 strongly agree. Although caregiver burden has been studied extensively, cancer patients selfperceived burden on caregivers has been an understudied phenomenon. The purpose of the study was to develop a short and a screening version of the zarit burden interview. It is important to seriously look at any item on the burden scale where the answer was scored as a 3 or 4 quite frequently or nearly always. The caregiver burden scale, adapted version from the family practice notebook, is a 22item version of the caregiver burden interview. Caregiving and the experience of subjective and objective burden. To measure objective burden, caregivers were asked to rate the degree to which each of 56 problems was present on a 3point scale ranging from 0, none, to 2, severe. Reliability and validity of the subjective burden scale in.
The scale includes 22 questions that cover the areas of health, social and individual life. Adaptation and validation of the caregiver burden inventory. Profiles of family caregivers of patients at the end of. The kingston caregiver stress scale kcss is primarily a scale used to monitor change in a family caregivers stress level over time. Some assessment tools zarit burden inventory and short form burden interview caregiver burden scale caregiver distress activities caregiver strain index caregiver stress scale cost of care index montgomery burden interview perceived caregiver burden scale perceived stress scale post references, there is a guide on where to find these.
1371 1241 963 641 888 1325 964 577 488 322 1630 1045 585 1574 1154 1538 491 214 891 1150 1326 1242 79 470 1187 1182 1310 803 348 722 1399 592 1137 327